Publications And Presentations Information

Data analyses can be conducted at the RURAL Cohort Study Statistical Data Coordinating Center at the University of Pennsylvania or a local institution. For analysis performed at the local institution, data will be provided in de-identified formats with unique identifiers where appropriate. Data will be provided in comma separated values (CSV) and SAS formats.

Please note that for investigators that do not reside at a RURAL Core, a data use agreement (DUA) between the University of Pennsylvania and the receiving institution is required prior to data sharing. Additionally, the investigator will be asked to sign the RURAL Data Access Agreement for access to the data. In the Data Access Agreement, the investigator will appoint a Data Steward who will have responsibility for downloading the data and maintaining data security. The Data Steward will be the only individual at the receiving institution with access to download the datasets.

To ensure accuracy and consistency in reporting RURAL Study data, all data requests must be submitted to the Study Coordinating Center (SCC) via this Dataset Request REDCap Form. All data requests will be assessed by the SCC in collaboration with the appropriate sub-committee.

Please see the RURAL Data Request Policy document for detailed information on RURAL Study data-related processes.

The RURAL Publications and Presentations Subcommittee Policy, the RURAL Publications and Presentations Policy Flowchart for Manuscripts and Abstracts, and the RURAL Working Group and Writing Group Processes documents are available by emailing the RURAL Cohort Study Coordinating Center at the University of Texas Health Science Center at San Antonio: rural@uthscsa.edu.

For more information, please refer to this video:

These policies and processes are subject to change based upon the growth and needs of the RURAL Cohort Study, NHLBI requests, OSMB review, and internal input.

The RURAL Investigators maintain a culture of representation, respect, and collaboration. RURAL investigators have organized into core-oriented and topic specific working groups. Writing groups based on approved manuscript proposals, are formed within the working groups. If you are interested in joining one of the RURAL Working Groups, please contact the respective chair for more information. The RURAL Study suggests that lead authors present manuscript proposals to the appropriate working group for their assessment. If the working group is supportive of the proposal, lead authors may submit their proposal for review by the RURAL Publications & Presentations Subcommittee via the Manuscript portal.

If you are interested in developing a working group on a topic not listed or need additional information or assistance, please contact the RURAL Cohort Study Coordinating Center at the University of Texas Health Science Center at San Antonio: rural@uthscsa.edu.