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Data Collection Forms

The Risk Underlying Rural Areas Longitudinal (RURAL) Cohort Study is a longitudinal research project in select rural counties in Alabama, Kentucky, Louisiana, and Mississippi. A major goal of the study is to identify the frequency of and risk factors for heart and lung diseases and the unique factors contributing to health disorders in these communities, including psychosocial, economic, and familial factors, and how they interact together. Our data collection forms are completed by participants at various time points and through different mediums (phone call, in-person, and cell phone app).

Navigating this page:

This page contains information geared towards the scientific community, investigators, and potential investigators. The tabs on the left list the different stages of data collection. Within each tab, there are descriptions of each study stage and tables that list the different constructs or Case Report Forms (CRFs) collected during that stage.

The Recruitment and Retention Core (RRC) Call Center completes a Computer Assisted Telephone Interviewing (CATI) interview phone call to check that a person meets the eligibility requirements for participation in the RURAL Study. If the individual meets the eligibility requirements, the RRC Call Center operator will then roster the individual as a participant in the study.
The Case Report Forms (CRFs) for the MEU Exam are completed by a Mobile Examination Unit (MEU) technician or the RURAL participant while on the MEU.

 

Case Report Forms (CRFs) Tech-AdministeredSelf-Administered
Medical History Telehealth*X
Medical History MEU*X
Behavioral History Telehealth*X
Behavioral History MEU*X
Health Insurance*X
Residential History*X
Employment and Occupation*X
Personal Information*X
Family History*X
Medication Assessment***X
Medication UseX
AnthropometryX
Blood PressureX
Biospecimen CollectionX
Pregnancy TestX
Biosample ProcessingX
Dietary ScreenerX
Food InsecurityX
Healthcare UtilizationX
Financial StrainX
Housing StabilityX
ElectrocardiogramX
Ankle Brachial Index X
CT ScanX
EchocardiographyX
SpirometryX
Stress in ChildhoodX
DepressionX
CD-RISC Reliance**X
Exit InterviewX
* A tech may administer the questionnaire if there are challenges that preclude self-administration.
** This survey has a copyright and can not be downloaded.
*** This survey is available by emailing the RURAL Cohort Study Coordinating Center at the University of Texas Health Science Center at San Antonio: rural@uthscsa.edu
The mHealth Case Report Forms (CRFs) are entirely filled out on a cell phone app by RURAL participants who have agreed to participate in the mHealth element of the study. These CRFs are completed following the participant’s Mobile Examination Unit (MEU) examination. The CRFs differ in terms of the questions asked regarding their overall health and lifestyle, as well as the timing of the questionnaires.

 

Case Report Forms (CRFs)24 Hours7 Days1 Month3 Months4-6 Months
Social Supports and NetworksX
Religiosity “Religion and Spirituality”X
Self-efficacy/Locus of Control “Control of Personal Health Outcomes”X
Alcohol UseX
Sleep Disturbances (PSQI)X
ARIC COVIDX
Purpose in LifeX
OptimismX
Weight HistoryX
General Health Status (SF-12)*X
Work AddressX
Neighborhood SafetyX
Social CohesionX
Aesthetic Quality “Neighborhood Quality”X
WalkabilityX
Activities with NeighborsX
Access to Healthy FoodX
MARSX
Job Stress and Occupational HazardsX
CancerX
Sino-Nasal QuestionnaireX
General Health Status (SF-12)*X
Past Surgical HistoryX
Biological Parent Medical HistoryX
Alcohol UseX
Healthcare Utilization Post-MEU**X
* This survey has a copyright and can not be downloaded.
** This survey is available by emailing the RURAL Cohort Study Coordinating Center at the University of Texas Health Science Center at San Antonio: rural@uthscsa.edu
The Recruitment and Retention Core (RRC) Call Center conducts a Computer-Assisted Telephone Interviewing (CATI) phone call to check in with participants on their current health status, recent hospitalizations, and to update their contact information if necessary.
Yearly Follow Up CATI Scripts:
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